So this morning ar 7:30am Amberlyn woke me up crying saying that her head felt like it was going to explode
Posted on September 10, 2011 by
So this morning ar 7:30am Amberlyn woke me up crying saying that her head felt like it was going to explode. I tried to calm her to see if maybe it was her having an anxiety attack but no it just got worse. You could just see the pain written all across her face. So we loaded up the car and headed to the ER. By the time we got there she was in so much pain that she could not keep her eyes open it hurt so bad. We got her in and the dr immediately put her on iv fluids and gave her some pain meds. He didn't do any lab work which sort of had me scratching my head in bewilderment. Something told me to check Amberlyn's sugar, and I did.....It was 60! Which is low for her. So I made her drink some Apple Juice.
Just a quick update. We got to finally come home!
Posted on September 10, 2011 by
Just a quick update. We got to finally come home! We didn't get home til 1am Thursday due to some complications with delivery guy that was suppose to bring us oxygen. Was so glad that the Apria Austin delivery guy Timothy was so more accommodating than the San Antonio delivery man. So God Bless you Timothy for easing my fears! Amberlyn did her first physical therapy with Jeremy at Kethley Physical Therapy. Jeremy you are another God send. Thank you for ALWAYS taking care of my Amberlyn. I know she is in good hands when you are involved.
Finally got results from last week’s bronch
Posted on September 1, 2011 by
Sorry not updating sooner, but it wasn't til yesterday that we finally got results from last week’s bronch. The culture grew out another bacteria, so Amberlyn is on yet another antibiotic. Her insulin level has been out of whack and it was a mystery, until last night when Amberlyn snapped that one of the IV antibiotics is mixed with D5 (sugar water, basically)! Amberlyn was able to get up and walk to the cafeteria last night while on oxygen. That is BIG progress!! She was so proud of herself. It was very tiring but she stuck it out. There is some talk, but no guarantee yet, of sending her home maybe this weekend or early next week on IV antibiotics. Understandably she is nervous about it but Dr. Angel said that they aren't just going to make her leave. He wants her to think about it. We are still taking it a day at a time. Keep those prayers coming!
Love Mama Fett
Amberlyn has been up and around today
Posted on August 25, 2011 by
As we await results of yesterday’s bronchoscopy (don’t expect to hear anything til MAYBE tomorrow), Amberlyn has been up and around today (after laying low due to the “sedation effect” yesterday.) She has already walked the halls, which is a BIG improvement. And she has chowed down on my chocolate birthday cake! There continue to be bumps on the road (potassium level is out of whack today), but the swelling she experienced last week is pretty much gone – we are thinking positive right now and praying for a positive outcome to all the tests! To keep her mind off the pain in her back she has started making Christimas ornaments. Everyone that comes in are amazed at the ornaments she has made. Thanks so much to everyone who is holding us up in prayer. God bless each and every one of you.
Love Mama Fett
Amberlyn is not doing as well as we had hoped
Posted on August 22, 2011 by
Amberlyn is not doing as well as we had hoped. The pneumonia, which was better for a while, is now coming back and she has a lot of pain (in her back, at site where the pneumonia is located). New antibiotics have been ordered. They will do another biopsy on Wednesday to determine status of rejection. All your prayers are so important and we hope you will continue to pray that the pneumonia will be cured, her pain lessened and the signs of rejection DISAPPEAR!
Love
Mama Fett
The New Website is Up!
Posted on August 17, 2011 by
It is with great pleasure that I can announce our newly-redesigned website is live! We’ve been working hard on giving the site an attractive new look that reflects the maturity of our organization. I will be blogging as often as I can, and soon I’ll post full photo galleries of our past events and the children we’ve had the pleasure of serving.
If you’re not already following us on Twitter, or a fan on Facebook, what are you waiting for?!
Also, please consider donating to Amber’s Angels in order to help us give the best we can to the children we serve. Amber’s Angels brings movie nights, goodie bags, and special events to kids who are not able to leave the hospital, which is especially tough during the holiday seasons. Your generous donation helps to fund all the wonderful things we do!
Sincerely,
Amberlyn
Well dr came today. Its not what we wanted to hear.
Posted on August 16, 2011 by
Well dr came today. Its not what we wanted to hear. Amberlyn is showing signs of rejection. They are going to tank her up on steroids for three days which is what they first start doing for patients that start showing signs of rejection. I ask that everyone please just contact us by email, text or fb. We are trying to let this soak in and then get our boot straps on and hit this as hard as we can. Thank you for your understanding and please keep the prayers coming.
♥ ~Mama Fett~
They just took Amberlyn down for surgery. Keep the prayers coming!
Posted on August 15, 2011 by
They just took Amberlyn down for surgery. Keep the prayers coming!
~Amberlyn's Mom~
Amberlyn is at the transplant hospital in San Antonio
Posted on August 14, 2011 by
Below are entries that I have put on my facebook. Amberlyn is at the transplant hospital in San Antonio. She is not doing too good. Tomorrow is her 22nd birthday and she will be having surgery to make sure that she is not going into rejection. Please pray for her. The doctors feel that she IS NOT going into rejection but they need to do the surgery tomorrow to confirm what they feel. My thoughts are with DJ, Amberlyn's donor angel. He is the one that made it possible for Amberlyn to HAVE a 22nd birthday tomorrow.
