Amber's Angels Blog

Amberlyn & I both got food poisoning

Posted on October 22, 2011 by Debbie

If being in the hospital isn't enough to deal with, Amberlyn & I both got food poisoning from the food we ate from the cafeteria two days ago!

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Just a lot going on and I need to make sure that I am focusing on Amberlyn

Posted on October 19, 2011 by Debbie

i know i haven't updated. sorry. just a lot going on and i need to make sure that i am focusing on Amberlyn. we are still in a normal room. we have been having ups and downs. they started Amberlyn on some anti seizure meds. she hasn't had anymore since last monday but they want to give her something to help prevent them from happening. they are also giving her anti seizure meds to help with her headaches. i guess anti seizure meds are also used for headaches. that shocked me a little. she is really weak and has lost alot of weight.

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It has been a roller coaster ride for the past two days

Posted on October 15, 2011 by Debbie

So it has been a roller coaster ride for the past two days. Thursday Amberlyn was moved out of ICU and went to a normal room. Friday morning she went for an xray and came back all red in the face, it was swollen and her blood pressure/heart rate was sky high! The nurse called the doctor, he came to look at her and he immediately said get her to ICU stat!

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Posted on October 11, 2011 by Debbie

ok well now that Amberlyn is a little better I can update more. Amberlyn is in ICU at Seton Main in Austin. Monday morning around 4am she woke me up crying saying that her head was really hurting. I decided to take her to the ER here close to home. I only did that cuz I did not know if I would be able to get her to San Antonio without complications.

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Amberlyn is now out of ICU and in a normal room

Posted on October 6, 2011 by Debbie

Ok well I know it has been a couple of days since I have updated. A lot has happened in those couple of days. First let me tell you that Amberlyn is now out of ICU and in a normal room in transplant tele! Thank you Lord. She did have her second veino gram on Tuesday. The doctors wanted to a) take her port out, b) put stents in her veins to open them up and c) replace the port. But to much of their amazement they were able to use a balloon to open her veins. They were very happy to do that instead of having to use the stents.

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Went in yesterday to find Amberlyn awake, alert and NO TUBE!!!

Posted on October 4, 2011 by Debbie

went in yesterday to find Amberlyn awake, alert and NO TUBE!!! The doctors came in at 10am and at 10:30am they took the tube out! She still could not talk cuz her poor throat hurt so bad from the tube. But she wrote that she was glad it was out. Also said that she was trying to swallow and was gagging and that was why the dr said to get it out now. Amberlyn said that one of the drs had to walk out cuz he got emotional watching her struggle. He is a good dr. We have been VERY blessed with our transplant drs.

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Ok going to write a quick update before I leave for the hospital

Posted on October 3, 2011 by Debbie

Ok going to write a quick update before I leave for the hospital. Yesterday was a LONG day. I didn’t get back to the hotel til midnight and was just pure exhausted. They wanted to take the tube out yesterday but Amberlyn freaked out so the dr said to leave it in for now. She told the RT to work with Amberlyn during the day to get her maybe ready for her to take it out later. But the RT never worked with Amberlyn and it really pissed me off. The dr said that her x-rays still showed improvement, her kidneys are now showing that they are working better, and her pulmonary numbers on the vent are looking really good.

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Ok….well not good news. Amberlyn had her bronch today and the dr came and told us that we will have to wait for results

Posted on October 2, 2011 by Debbie

I need to update you on Amberlyn on Sept. 30th the following happened..... Ok....well not good news. Amberlyn had her bronch today and the dr came and told us that we will have to wait for results from the cultures that he took. Said that he was thinking of maybe keeping her overnight for observation but wanted to see how she does with the anthesethia (not sure I spelt that right) He said that we aren't at "the end" yet and for us to stay strong and he left. Then maybe 10 minutes later he came back and said that she had a reaction to the bronch and her face, chest and arms were swelling. So they had to intubate her and she is now in ICU heavily sedated to keep her calm and asleep. =[ I am so thankful that my Mom came with us today. I seriously would have been a basket case without her here. I love you Mom! We were able to stay in the ICU room til 8pm.

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Amberlyn wants me to let everyone know what is going on

Posted on September 29, 2011 by Debbie

Ok Amberlyn wants me to let everyone know what is going on. First and foremost please after you read this....PRAY....second please DO NOT call or text her, just leave her positive encouragement on fb or here. She is checking fb often now. This past tuesday her transplant apptment was not good. We knew something was up when Dr Angel came in and was somber. Normally he comes in smiling and says she looks great and gives her a hug. Tuesday he went straight to the point and you could see concern in his eyes.

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So this morning ar 7:30am Amberlyn woke me up crying saying that her head felt like it was going to explode

Posted on September 10, 2011 by Debbie

So this morning ar 7:30am Amberlyn woke me up crying saying that her head felt like it was going to explode. I tried to calm her to see if maybe it was her having an anxiety attack but no it just got worse. You could just see the pain written all across her face. So we loaded up the car and headed to the ER. By the time we got there she was in so much pain that she could not keep her eyes open it hurt so bad. We got her in and the dr immediately put her on iv fluids and gave her some pain meds. He didn't do any lab work which sort of had me scratching my head in bewilderment. Something told me to check Amberlyn's sugar, and I did.....It was 60! Which is low for her. So I made her drink some Apple Juice.

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